Wednesday, September 19, 2012

More rest needed

Steve is doing well overall but is weak. This is hard for him because he can't stop himself until he's ready to fall down and then it takes longer to recover.

I'd like to be his mommy and make him lay down every 2 hours for a 15 minute rest but I'm just a wife and at work.

His hands still bother him too. Just before the cancer he was being treated for rheumatoid arthritis which in itself is hard to deal with. It is a systemic autoimmune disease which means his immune system mistakes some part of his body as pathogen and attacks it's own cells and tissue. His body will flare up with the disease then go into a period of remission that may last about a month. It affects the joints in his hands the worst. Doing simple things like taking a cap off a bottle of water can be hard. It also cases extreme fatigue and fevers. There is no cure for this and the medication he was on was a steroid with bad side effects. I think we need to check into getting something else for this.

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