Steven is doing so much better. The steroid is not even keeping him awake at night. What a blessing. So he isn't doing jumping jacks, or even walking at a fast pace, but IS sitting up in bed and eating. He has a sense of humor, so I do too.
The only drawback of the steroid is, he has a bad case of hiccups. He actually has hiccups more often than not. Even through the night. We didn't know if he would be able to have his scans. So I called the doctor and he prescribed something that doesn't work very well. Steve found drinking out of a straw will work for a short time, and I bought gripe water (suggested by those with babies) which I promptly spilled on the counter. I managed to save enough for a dose and once again it worked, but only temporarily.
Have you ever tried to eat with the hiccups? He is frustrated. I'll call today and see if the dose can be upped.