Steven has decided he will walk again. I'm not sure what happened during his week on the ventilator but he lost the ability to use his legs. When asked to lift them straight up while laying in bed, he was able to raise them about 2 inches. Now, after much practice of just standing and balancing, he is walking a few steps. We are both encouraged. This man is not going to just lay in bed and take what comes his way. We have the pain meds ordered by hospice but so far he has not wanted them. He will take Aleve. His back has been hurting him with shooting pains and his feet and ankles are swollen. It's hard for him to get comfortable.
For me, while it is overwhelmingly demanding when you have to do so much for another person, I wouldn't have it any other way. We're getting a routine going, which involves being up at 3 a.m. for coffee. Not sure how we do it, but we manage to fall asleep after an hour or so. Still worried about my body holding up for the physical part of moving and transferring him.